We found out yesterday that after 3 months of chemo hubby’s brain tumour has shrunk by 2mm. So far he’s had four doses of Avastin treatment, and was scanned after the 3rd, so this is very good news and means that treatment will continue for at least another 3 months. …
After being turned away from the second chemo dosing because hubby’s blood pressure was too high, we’d become model patients – sorting out meds for hypertension, and buying a fancy digital blood pressure monitor which we use daily. We’d had a blip last week when I’d had to call the …
After a two hour drive through not very nice traffic, car parking issues, seeing the oncologist, and settling down for chemo dosing number two, it was quite disheartening to then learn that it couldn’t go ahead. Hubby’s blood pressure was too high, and they couldn’t risk doing permanent damage to …
Hubby, aka ‘Mr Magoo’, has another infection in the big toe on his right foot. This means that the Avastin treatment has to be delayed even further whilst the foot heals. Not an easy ask when the circulation in his legs is so impeded thanks to other NF2 tumours and …
Whilst hubby and I are similar in many ways, we have very different approaches to shining a light on the darker times such as now, what with his brain tumour, chemo, and Norwich City‘s performance. How hubby makes himself feel better: Watching ‘Man v. Food‘ Watching ‘Backyard Oil‘ Watching ‘Ice Road …
We received some good news on Friday. The funding for hubby’s round of Avastin therapy has been granted, and preparations are under way for the baseline tests. We’re now waiting for an appointment with the oncologist, and a new MRI scan date. As hubby has an ABI – Auditory Brainstem …
Hubby had a seizure in the early hours last Saturday. We were spending the weekend with mum-and-dad-in-law at a holiday cottage in Monmouthshire, Wales and had arrived the previous afternoon. By 1am I was on the phone to the ambulance service, trying to direct them to a building in the …
It’s always the case isn’t it? You try desperately not to cry in front of people, to give the impression that you’re holding it all together nicely, and then someone says the strangest thing and sets you off. I’ve been seeing a Bowen Therapist for a little while as recent …
Or rather, relinquishing it. I’ve gotten a bit tense the last few weeks (no shit, Sherlock!), but if there’s a time for going easy, for self-compassion, then that time is now. We can’t control the NF2. It’s a bugger of a condition that does it’s own thing. We have no …
The text came through thirty minutes before I had to leave for work. “Unfortunately the cranial tumour has grown. I’ve been offered chemo or surgery. We’re to talk it through and get back to the doctors. Please don’t worry.” I knew from the start that hubby had NF2. It was …